The last 365

“Last July, our 4-year-old daughter Eliza was diagnosed with a rare terminal genetic disease called Sanfilippo Syndrome-Type A. In one terrifying instant, we were told that we would have to watch her fade away before our eyes.

Eliza and other children with this disease are missing an essential enzyme for normal cellular function. Over time, a toxic material called heparan sulfate builds up in their brain and body leading to severe disability and death before they even reach their teens. This disease affects both genders, all races, all countries and continents. It is everywhere and the world needs to know.

Eliza Today and Her Future

Right now Eliza is a fun loving 4-year-old who loves to sing, run and MOST of all, cuddle. She loves to play dress up and horse around with her rowdy big brother Beckham. She is, however, beginning to show signs of the disease in her learning and attention. And if nothing changes, it will only get worse from here.

By age 6, most children with her disease have irreversible brain damage and lose the ability to speak. As the disease continues to tear through her brain and body, she will lose the ability to walk and eventually she won’t even be able to feed herself as seizures ravage her body.”

Heaven not Harvard

If you only read one entry of mine – read this one. If you only share one entry – share this one. If you never come back to Heaven Not Harvard, but we find a way to make a miracle, then God used me today and that is enough. If you are a blogger at all, please read to the end for a special challenge.

With all the kids heading back to school, it has really hit home that this is it. This is my last year of being home with my daughter all day, everyday. Next year she will be heading off to school. Our home and church won’t be her whole world anymore. She will have teachers, friends, and experiences of which I am not a part. Daddy and I will still be her most important people for a while, but those days are numbered as well…

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When We Threaten Children

 

When we threaten a child, it speaks of a relationship gone awry.  A relationship in which there is no mutual, respectful reciprocity.  And the only way that the adult can wield power over the child, is to threaten.

It also speaks about the absence of connection between the adult and the child.

A relationship should never be about threats, control, or power.  It should be about the connection that two people have with each other.

And so it should be the same between a parent, a teacher, or a significant adult, and a child.  But when an adult uses threats to control a child or exercise power over a child,  the adult, unintentionally though it may be, fractures the connection between himself or herself and the child.

While children are often very forgiving, when an adult uses threats too often, that connection may become, with time and with continual experience, increasingly difficult to reestablish.

Connect with children through love, empathy, compassion, kindness, and understanding, and our children will grow to become loving, empathetic, compassionate, kind, and understanding. Control children with threats and we disconnect from them because they become distrustful and fearful of us.

Just Let Our Children Bloom

We have got to stop making our children compete with each other over everything and just let them bloom.

Young children are still developing their self-concept, which means that they are in the very important process of building and establishing the foundation for their self-esteem, self-awareness, self-recognition, and self-definition.

We all know that children develop at different rates. When adults (at home and at school) continually put them in situations where they are either encouraged or made to challenge with their peers, children are not going to develop very healthy and positive self-concept if they do not “perform” as well as their peers. Also, for the child, the joy and fun in the process of the activity are removed, when children’s focus is made to shift to competing with another.